Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
Tag: ehlers-danlos
What’s in my bag?! Cruise holiday spoonie suitcase edition
As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”
Heart to Heart: Chronic Illness Update
I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”
EDS Awareness Bundle Giveaway
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
What’s in my Bag?! Spoonie Handbag Edition
Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful! [youtube… Continue Reading “What’s in my Bag?! Spoonie Handbag Edition”
TMI Tag!
The Lovely Georgina over at Georgina’s Journey tagged me to do the TMI tag so I could tell you all a little more about myself outside of my Chronic Illnesses. So here’s me answering 50 questions so you can found out some facts about… Continue Reading “TMI Tag!”
Zebra PJs!
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
24 Hours of EDS || a day in my life
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Living With Ehlers Danlos Syndrome #EDSAwarenessMonth
Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”
#EDSAwarenessMonth Project
Hi guys! It has been a super busy week for me with a wedding, Easter, working & a neurology appointment plus I’ve been struck down with an awful cold so, unfortunately, I’m not feeling great and haven’t been able to put out a proper… Continue Reading “#EDSAwarenessMonth Project”
What is Ehlers Danlos Syndrome?
Today has been a bit of a stressful one. I’ve had to call lots of different medical people and am waiting to here back from my GP. I’ve had to sort authorisation for a follow up with my Neurologist, my referral for an ultrasound… Continue Reading “What is Ehlers Danlos Syndrome?”