Month: March 2017

CSF Leak: My Blood Patch Experience

New video which shows the recovery from my most recent blood patch. Every Blood Patch experience is different and trying to manage having one every month whilst trying to fight my other chronic illnesses has been pretty difficult for me. It’s been 2 weeks…

Simple Stitch Shortbread

I’ve been thinking about doing this recipe for a while as I used to be obsessed with biscuits and shortbread was my absolute favourite. I used to buy some Tesco everyday value shortbread and munch my way through the whole pack! When I was…

CSF Leak: Blood Patch Surgery

I have realised that I talk quite a lot about my Postural Orthostatic Tachycardia Syndrome (POTS) & Ehlers Danlos Syndrome (EDS) but I tend to leave out my Cerebrospinal Fluid Leak (CSF leak), which is funny because it was my bad headaches that started…

To The Customer Who Judged Me For Sitting Down On The Job.

This is another piece I’ve just had published on the Mighty which I wanted to share with you. After working in the retail sector for as long as I have, I’ve learned that customers are inquisitive and tend to point out when something is different. In my…

7 Things I only do because I have POTS/EDS! #Rarediseaseday

Here’s a video I did for Rare Disease Day (28/02). Sorry I’m a little late putting it up on here but it’s still worth a watch 🙂 Please Subscribe to my Youtube Channel 🙂