Posted on November 24, 2021
by Chronically Jenni
744 Comments
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
Category: Illness, UncategorizedTags: black friday, christmas, christmas gift guide, christmas gifts, chronic fatigue, chronic illness, chronic illness holiday gift guide, chronic pain, disability, disabled, eds, ehlers-danlos syndrome, gift guide, happy holidays, holiday gift, holiday gift guide, pots, spoonie holiday gift guide
Posted on August 23, 2019
by Chronically Jenni
438 Comments
Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”
Category: Illness, UncategorizedTags: babe with a mobility aid, chronic illness, chronically ill, different aids for different days, disability, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, mobility aid, mobility aids, pots, spoonie, walker, walking stick, wheelchair, zebra
I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic migraine, chronic pain, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, guilt, mental health, pacing, postural orthostatic tachycardia syndrome, pots, spoonie, update, zebra, zebras
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube