Posted on May 31, 2017
by Chronically Jenni
1 Comment
The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”
Category: Illness, UncategorizedTags: blog, chronic fatigue, chronic illness, chronic pain, Degree, disability, Drama, eds, ehlers-danlos syndrome, friends, Illness, Norwich, Norwich Vegan Festival, postural orthostatic tachycardia syndrome, pots, spoonie, spoonies sisters, UEA, university, Vegan, vlog, zebras
Posted on May 13, 2017
by Chronically Jenni
4 Comments
So I realised today, as I prepare myself for another night enjoying Graham Norton making fun of Europe…and probably Australia for the first time since Brexit (i.e we will get even less points than usual), that is has been a whole year since I… Continue Reading “Eurovision NEEDS Pizza || Mark 2”
Category: Food & Music, Recipes: Savoury Snacks and Suppers, UncategorizedTags: blog, cheese, comfort food, dairy free, egg free, eurovision, food, free from, gluten free, lactose free, music, pizza, recipe, tesco, tomato sauce, Vegan, vegeatarian
Posted on May 13, 2017
by Chronically Jenni
7 Comments
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube
Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”
Category: Illness, UncategorizedTags: #edsawarenessmonth, awareness, blog, chronic fatigue, chronic illness, chronic pain, collaboration, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, living with, living with eds, may, month, project, spoonie, video, vlog, youtube, zebra, zebras