I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a video instead to try and update you on my battle with chronic illness so far and the fight I’m currently trying to win to in regards to getting my pain down and the challenges I face with pacing, guilt and coping mentally as well as physically. I was pretty fatigued when I was filming this so hopefully the point comes across. Love & Spoons to you all. It gets tough at times but we can do this!
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic migraine, chronic pain, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, guilt, mental health, pacing, postural orthostatic tachycardia syndrome, pots, spoonie, update, zebra, zebras