Tag: chronic migraine

My Invisible Journey – One Chronic Year On!

Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”

Adventures with EDS: FriendsFest, Being on TV & Uni Prep

With less than a week until I go back to uni, and as of Thursday I was officially deemed fit to return, it’s been a busy week but at least it has finally been a productive one. Some great highlights included going to friendsfest… Continue Reading “Adventures with EDS: FriendsFest, Being on TV & Uni Prep”

What’s in my bag?! Cruise holiday spoonie suitcase edition

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”

Heart to Heart: Chronic Illness Update

I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”

What’s in my Bag?! Spoonie Handbag Edition

Ever wanted a little snoop in my handbag? πŸ˜› You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!

24 Hours of EDS || a day in my life

Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”