Tag: Illness
Posted on October 18, 2019
by Chronically Jenni
524 Comments
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
Category: UncategorizedTags: chronic illness, chronically ill, disability, eds, ehlers-danlos, friday thoughts, Illness, invisible, invisible disabilities, invisible disabilities week, invisible illness, pain, pots, spoonie
Posted on September 28, 2019
by Chronically Jenni
361 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on November 6, 2017
by Chronically Jenni
244 Comments
Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS.… Continue Reading “Dysautonomia Awareness Month & Recent Vlogs”
Category: Illness, UncategorizedTags: adventures, adventures with EDS, awareness month, chronic, chronic illness, chronic pain, dysautonomia, eds, ehlers-danlos, ehlers-danlos syndrome, Illness, living with pots, postural orthostatic tachycardia syndrome, pots, video, vlog, vlogger
Posted on November 1, 2017
by Chronically Jenni
144 Comments
Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”
Category: Illness, UncategorizedTags: blood patch, chronic fatigue, chronic illness, chronic migraine, chronic pain, csf leak, disability, eds, ehlers-danlos, ehlers-danlos syndrome, Illness, invisible, pain, postural orthostatic tachycardia syndrome, pots, vlog, youtube
As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”
Category: Illness, UncategorizedTags: bag, chronic fatigue, chronic illness, chronic migraine, chronic pain, cruise, edition, eds, ehlers-danlos, ehlers-danlos syndrome, fatigue, headache, holiday, Illness, migraine, pain, postural orthostatic tachycardia syndrome, pots, spoonie, suitcase, vacation, whats in my bag
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”
Category: Illness, UncategorizedTags: blog, chronic fatigue, chronic illness, chronic pain, Degree, disability, Drama, eds, ehlers-danlos syndrome, friends, Illness, Norwich, Norwich Vegan Festival, postural orthostatic tachycardia syndrome, pots, spoonie, spoonies sisters, UEA, university, Vegan, vlog, zebras
Posted on October 30, 2016
by Chronically Jenni
180 Comments
Wow, it’s been a while! My excuse for not having posted anything in such a long time was going to be that I haven’t been very well, but , of course, that’s a bit of a rubbish excuse, seen as, I wouldn’t have ever… Continue Reading “My Invisible Journey”
Category: Illness, UncategorizedTags: awareness, chronic, chronic illness, dairy free, disability, dysautonomia, eds, ehlers-danlos, ehlers-danlos syndrome, food, gluten free, hypermobility, Illness, invisible, physio, postural orthostatic tachycardia syndrome, pots, refined sugar free