Tag: disability
Posted on December 10, 2021
by Chronically Jenni
8,022 Comments
I finally got to see Frozen the musical, almost 2 years after I originally booked it, & it was definitely worth the wait! Here’s my review including access & covid safety information.
Posted on November 24, 2021
by Chronically Jenni
187 Comments
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
Category: Illness, UncategorizedTags: black friday, christmas, christmas gift guide, christmas gifts, chronic fatigue, chronic illness, chronic illness holiday gift guide, chronic pain, disability, disabled, eds, ehlers-danlos syndrome, gift guide, happy holidays, holiday gift, holiday gift guide, pots, spoonie holiday gift guide
Posted on October 18, 2019
by Chronically Jenni
217 Comments
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
Category: UncategorizedTags: chronic illness, chronically ill, disability, eds, ehlers-danlos, friday thoughts, Illness, invisible, invisible disabilities, invisible disabilities week, invisible illness, pain, pots, spoonie
Posted on September 28, 2019
by Chronically Jenni
14 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on August 23, 2019
by Chronically Jenni
91 Comments
Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”
Category: Illness, UncategorizedTags: babe with a mobility aid, chronic illness, chronically ill, different aids for different days, disability, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, mobility aid, mobility aids, pots, spoonie, walker, walking stick, wheelchair, zebra
Posted on November 1, 2017
by Chronically Jenni
2 Comments
Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”
Category: Illness, UncategorizedTags: blood patch, chronic fatigue, chronic illness, chronic migraine, chronic pain, csf leak, disability, eds, ehlers-danlos, ehlers-danlos syndrome, Illness, invisible, pain, postural orthostatic tachycardia syndrome, pots, vlog, youtube
Posted on June 20, 2017
by Chronically Jenni
2 Comments
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
Posted on May 31, 2017
by Chronically Jenni
1 Comment
The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”
Category: Illness, UncategorizedTags: blog, chronic fatigue, chronic illness, chronic pain, Degree, disability, Drama, eds, ehlers-danlos syndrome, friends, Illness, Norwich, Norwich Vegan Festival, postural orthostatic tachycardia syndrome, pots, spoonie, spoonies sisters, UEA, university, Vegan, vlog, zebras
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube
Posted on October 30, 2016
by Chronically Jenni
4 Comments
Wow, it’s been a while! My excuse for not having posted anything in such a long time was going to be that I haven’t been very well, but , of course, that’s a bit of a rubbish excuse, seen as, I wouldn’t have ever… Continue Reading “My Invisible Journey”
Category: Illness, UncategorizedTags: awareness, chronic, chronic illness, dairy free, disability, dysautonomia, eds, ehlers-danlos, ehlers-danlos syndrome, food, gluten free, hypermobility, Illness, invisible, physio, postural orthostatic tachycardia syndrome, pots, refined sugar free