Tag: postural orthostatic tachycardia syndrome

How to survive the summer with POTS

After my successful EDS Survival Kit post some time ago I’ve been meaning to write one for POTS and just never got around to it! But now the UK is facing an unprecedented heatwave it seems like there really isn’t a better time. This… Continue Reading “How to survive the summer with POTS”

Spoonie Vlogmas!

Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got… Continue Reading “Spoonie Vlogmas!”

Dysautonomia Awareness Month & Recent Vlogs

Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS.… Continue Reading “Dysautonomia Awareness Month & Recent Vlogs”

My Invisible Journey – One Chronic Year On!

Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”

Adventures with EDS: FriendsFest, Being on TV & Uni Prep

With less than a week until I go back to uni, and as of Thursday I was officially deemed fit to return, it’s been a busy week but at least it has finally been a productive one. Some great highlights included going to friendsfest… Continue Reading “Adventures with EDS: FriendsFest, Being on TV & Uni Prep”

What’s in my bag?! Cruise holiday spoonie suitcase edition

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”

Heart to Heart: Chronic Illness Update

I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”

What’s in my Bag?! Spoonie Handbag Edition

Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!

TMI Tag!

The Lovely Georgina over at Georgina’s Journey tagged me to do the TMI tag so I could tell you all a little more about myself outside of my Chronic Illnesses. So here’s me answering 50 questions so you can found out some facts about… Continue Reading “TMI Tag!”

A Trip To Norwich

The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”