Tag: postural orthostatic tachycardia syndrome

Spoonie Vlogmas!

Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got…

Dysautonomia Awareness Month & Recent Vlogs

Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS….

My Invisible Journey – One Chronic Year On!

Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier…

Adventures with EDS: FriendsFest, Being on TV & Uni Prep

With less than a week until I go back to uni, and as of Thursday I was officially deemed fit to return, it’s been a busy week but at least it has finally been a productive one. Some great highlights included going to friendsfest…

What’s in my bag?! Cruise holiday spoonie suitcase edition

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my…

Heart to Heart: Chronic Illness Update

I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a…

What’s in my Bag?! Spoonie Handbag Edition

Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!