As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going, right?!) but for those living with EDS it is a daily struggle that lasts a lifetime. So in order to continue spreading awareness I am trying to raise a little money for Ehlers Danlos Support UK, a UK charity which; raises awareness among the public and, more importantly, the medical community; supports sufferers, like myself; and hopes to, maybe, one day, help find a cure for this disabling genetic condition.
People with Ehlers- Danlos Syndrome call themselves Zebras, as doctors are taught ‘when you hear hoof-beats, think horses, not Zebras’ meaning they think of the most obvious and fixable answer to the problem not a complicated or rare condition, but it often means symptoms are not added or managed effectively which delays diagnosis.
So this month you can buy these amazing Zebra Pyjamas (£13) and Slippers (£8) by searching Zebra on avon.uk.com/store/Shop-With-Jenni and I’ll be donating 5% of your purchase to EDS UK. Whether your a Zebra or want to support a Zebra, I’d love you to buy, wear and share these pjs with the #ZebraStrong and get people asking ‘Why the Zebra?’.
#eds #zebrastrong #zebra #avon