Posted on September 28, 2019
by Chronically Jenni
14 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on August 23, 2019
by Chronically Jenni
91 Comments
Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”
Category: Illness, UncategorizedTags: babe with a mobility aid, chronic illness, chronically ill, different aids for different days, disability, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, mobility aid, mobility aids, pots, spoonie, walker, walking stick, wheelchair, zebra
Posted on December 22, 2017
by Chronically Jenni
13 Comments
Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got… Continue Reading “Spoonie Vlogmas!”
Category: Illness, UncategorizedTags: christmas, December, eds, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, living with pots, postural orthostatic tachycardia syndrome, pots, spoonie, Vlogmas, zebra
Posted on June 1, 2017
by Chronically Jenni
3 Comments
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
Category: Illness, UncategorizedTags: #zebrastrong, avon, ceds, chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, hypermobile, hypermobility, pyjamas, slippers, spoonie, veds, zebra, zebras