Spreading Awareness & Helping Others with EDS & POTS
Hey Guys, I’m Jenni, I’m 26 and I’m from Essex (please don’t hold that against me)
I’m a drama graduate who currently works for a environmental charity and on the weekends I’m a children’s party entertainer. I’m also a content creator, model, voiceover artist, Guide leader and dog walker. But the reason you’ve probably found this blog is because I also have a cocktail of invisible chronic illnesses. I was diagnosed with Ehlers Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS) and a CSF leak in 2016. I also have various dietary restrictions because of my conditions. I had 3 blood patches in 2017 to fix my leak but manage my other illnesses every day. I share these experiences with you to raise awareness and help others with chronic illnesses. I was recently nominated for the Positive Role Model Award for Disability at the National Diversity Awards for my work in the Chronic Illness community.
You can find most of my content over on my Youtube Channel and I’m also a regular on Instagram. I also have a Facebook Page and Support Group which I’d love for you to be part of. Every week I do a vlog called Chronic Illness Weekly all about my life with my conditions and do regular awareness videos.
I’m so glad to have you here with me. Please drop me a comment or a message and tell me all about you ❤
Spoons & Love
Glad I found your blog. I feel like I found hope today your YouTube, your support group, and instagram. I’ve been battling this bully for 9yrs and I’m still struggling and I feel totally lost.
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