Tag: pots
Posted on November 24, 2021
by Chronically Jenni
187 Comments
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
Category: Illness, UncategorizedTags: black friday, christmas, christmas gift guide, christmas gifts, chronic fatigue, chronic illness, chronic illness holiday gift guide, chronic pain, disability, disabled, eds, ehlers-danlos syndrome, gift guide, happy holidays, holiday gift, holiday gift guide, pots, spoonie holiday gift guide
Posted on August 30, 2021
by Chronically Jenni
114 Comments
Do you live with POTS but struggle to get enough salt in your diet? I adore salty snacks & adding lots of salt to my food but I know many people who can think of nothing worse. If, like me, you have POTS or… Continue Reading “Vitassium”
Category: IllnessTags: chronic illness, cystic fibrosis, dysautonomia, eds, illeostomy, increase salt, postural orthostatic tachycardia syndrome, Postural Tachycardia Syndrome, pots, POTS Syndrome, salt, salt tablets, sodium, vasovagal syncope, vitassium
Posted on June 29, 2020
by Chronically Jenni
88 Comments
My personal life is something I’ve always kept fairly private but in the world of social media sometimes this can skew the view of what it is like to be in a relationship whilst being diagnosed with a chronic illness. For the readers who… Continue Reading “Relationships & Chronic Illness”
Category: UncategorizedTags: chronic fatigue, chronic illnes, chronic pain, chronically ill, coronavirus, dating, dating and chronic illness, dating during coronavirus, dear future husband, eds, ehlers-danlos syndrome, love, pots, relationships, relationships and chronic illness, shout out to my ex
After my successful EDS Survival Kit post some time ago I’ve been meaning to write one for POTS and just never got around to it! Dysautonomia awareness month seemed like the perfect time. A lot of these tips relate to keeping cool as heat… Continue Reading “My POTS Survival Kit: Dysautonomia Awareness Month”
Category: Illness, UncategorizedTags: cold, dysautonomia, dysautonomia awareness month, fan, health, heat, heatwave, hot, hot weather, ice, living with pots, postural orthostatic tachycardia syndrome, pots, wellness
Posted on October 18, 2019
by Chronically Jenni
217 Comments
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
Category: UncategorizedTags: chronic illness, chronically ill, disability, eds, ehlers-danlos, friday thoughts, Illness, invisible, invisible disabilities, invisible disabilities week, invisible illness, pain, pots, spoonie
Posted on September 29, 2019
by Chronically Jenni
10 Comments
September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”
Category: Illness, UncategorizedTags: chronic illness, chronic pain, csf leak, eds, ehlers-danlos, ehlers-danlos syndrome, letter, letter to pain, pain, pain awareness month, pots, september
Posted on September 28, 2019
by Chronically Jenni
14 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on August 23, 2019
by Chronically Jenni
91 Comments
Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”
Category: Illness, UncategorizedTags: babe with a mobility aid, chronic illness, chronically ill, different aids for different days, disability, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, mobility aid, mobility aids, pots, spoonie, walker, walking stick, wheelchair, zebra
Posted on August 21, 2019
by Chronically Jenni
38 Comments
Very Busy Week Last Week! Went back to the gym, had 2 hospital appointments (Neurology at Queens & my year follow up from rehab at RNOH) and went on a date day to Thorpe Park and discovered their Ride Access Pass. I also went shopping… Continue Reading “Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park”
Category: Illness, UncategorizedTags: accessibility, Accessible, appointments, chronic fatigue, chronic illness, chronic pain, eds, ehlers-danlos, ehlers-danlos syndrome, gym, haul, hospital, hospital appointments, pots, Ride Access Pass, RNOH, shopping, Thorpe Park
Posted on December 22, 2017
by Chronically Jenni
13 Comments
Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got… Continue Reading “Spoonie Vlogmas!”
Category: Illness, UncategorizedTags: christmas, December, eds, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, living with pots, postural orthostatic tachycardia syndrome, pots, spoonie, Vlogmas, zebra