Tag: ehlers-danlos syndrome

Relationships & Chronic Illness

My personal life is something I’ve always kept fairly private but in the world of social media sometimes this can skew the view of what it is like to be in a relationship whilst being diagnosed with a chronic illness. For the readers who… Continue Reading “Relationships & Chronic Illness”

Pain Awareness Month: A Letter to Pain

September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”

Friday Thoughts: The National Diversity Awards

It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”

My EDS Survival Kit (Part 1)

Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a… Continue Reading “My EDS Survival Kit (Part 1)”

All That You Can’t See: Living with Ehlers Danlos Syndrome

If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project… Continue Reading “All That You Can’t See: Living with Ehlers Danlos Syndrome”

Friday Thoughts: Different Aids for Different Days

Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”

Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park

Very Busy Week Last Week! Went back to the gym, had 2 hospital appointments (Neurology at Queens & my year follow up from rehab at RNOH) and went on a date day to Thorpe Park and discovered their Ride Access Pass. I also went shopping… Continue Reading “Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park”

Spoonie Vlogmas!

Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got… Continue Reading “Spoonie Vlogmas!”

Dysautonomia Awareness Month & Recent Vlogs

Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS.… Continue Reading “Dysautonomia Awareness Month & Recent Vlogs”

My Invisible Journey – One Chronic Year On!

Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”