Spreading Awareness & Helping Others with EDS & POTS
I finally got to see Frozen the musical, almost 2 years after I originally booked it, & it was definitely worth the wait! Here’s my review including access & covid safety information.
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
Do you live with POTS but struggle to get enough salt in your diet? I adore salty snacks & adding lots of salt to my food but I know many people who can think of nothing worse. If, like me, you have POTS or… Continue Reading “Vitassium”
On a normal year I would normally not even have started my holiday shopping yet and I would be a complete Scrooge to anyone I came across playing holiday music or who had put their Christmas tree up already. Maybe it’s because I have… Continue Reading “Spoonie Holiday Gift Guide”
Something people may not know about me is that I’ve struggled with my mental health for a long time. I’ve been living with anxiety much longer than I’ve been living with the symptoms of my physical conditions; so why do I find it so… Continue Reading “World Mental Health Day”
This is my first September as an adult. ‘Why do you say that Jenni? Aren’t you almost 25?’ That fact is true, so I have supposedly been an adult for 7 years. And although I thought I was ‘all grown up’ at 14 I… Continue Reading “September”
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a… Continue Reading “My EDS Survival Kit (Part 1)”