Category: Uncategorized

World Mental Health Day

Something people may not know about me is that I’ve struggled with my mental health for a long time. I’ve been living with anxiety much longer than I’ve been living with the symptoms of my physical conditions; so why do I find it so… Continue Reading “World Mental Health Day”

September

This is my first September as an adult. ‘Why do you say that Jenni? Aren’t you almost 25?’ That fact is true, so I have supposedly been an adult for 7 years. And although I thought I was ‘all grown up’ at 14 I… Continue Reading “September”

Relationships & Chronic Illness

My personal life is something I’ve always kept fairly private but in the world of social media sometimes this can skew the view of what it is like to be in a relationship whilst being diagnosed with a chronic illness. For the readers who… Continue Reading “Relationships & Chronic Illness”

My POTS Survival Kit: Dysautonomia Awareness Month

After my successful EDS Survival Kit post some time ago I’ve been meaning to write one for POTS and just never got around to it! Dysautonomia awareness month seemed like the perfect time. A lot of these tips relate to keeping cool as heat… Continue Reading “My POTS Survival Kit: Dysautonomia Awareness Month”

Friday Thoughts: Invisible Disabilities Week

‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”

Pain Awareness Month: A Letter to Pain

September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”

Friday Thoughts: The National Diversity Awards

It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”

My EDS Survival Kit (Part 1)

Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a… Continue Reading “My EDS Survival Kit (Part 1)”

Chronic Illness Weekly: Week’s 85 & 86

If you’ve been over to my Instagram page this week you’ll have seen I’ve been fighting off a major flare so it’s time for a double Chronic Illness Weekly update. You’ll see me battling insomnia and Hospital appoints. Then I head on a HUGE… Continue Reading “Chronic Illness Weekly: Week’s 85 & 86”

All That You Can’t See: Living with Ehlers Danlos Syndrome

If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project… Continue Reading “All That You Can’t See: Living with Ehlers Danlos Syndrome”