Category: Uncategorized

Friday Thoughts: Invisible Disabilities Week

‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on…

Pain Awareness Month: A Letter to Pain

September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a…

Friday Thoughts: The National Diversity Awards

It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had…

My EDS Survival Kit (Part 1)

Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a…

Chronic Illness Weekly: Week’s 85 & 86

If you’ve been over to my Instagram page this week you’ll have seen I’ve been fighting off a major flare so it’s time for a double Chronic Illness Weekly update. You’ll see me battling insomnia and Hospital appoints. Then I head on a HUGE…

All That You Can’t See: Living with Ehlers Danlos Syndrome

If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project…

Friday Thoughts: Different Aids for Different Days

Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the…