Category: Illness

How to survive the summer with POTS

After my successful EDS Survival Kit post some time ago I’ve been meaning to write one for POTS and just never got around to it! But now the UK is facing an unprecedented heatwave it seems like there really isn’t a better time. This… Continue Reading “How to survive the summer with POTS”

Pain Awareness Month: A Letter to Pain

September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”

Friday Thoughts: The National Diversity Awards

It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”

My EDS Survival Kit (Part 1)

Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a… Continue Reading “My EDS Survival Kit (Part 1)”

All That You Can’t See: Living with Ehlers Danlos Syndrome

If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project… Continue Reading “All That You Can’t See: Living with Ehlers Danlos Syndrome”

Friday Thoughts: Different Aids for Different Days

Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”

Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park

Very Busy Week Last Week! Went back to the gym, had 2 hospital appointments (Neurology at Queens & my year follow up from rehab at RNOH) and went on a date day to Thorpe Park and discovered their Ride Access Pass. I also went shopping… Continue Reading “Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park”

Friday Thoughts: Maintaining Change

Nothing is so painful to the human mind as a great and sudden change. -Mary Shelley Change usually ends up being a positive thing, after all, I always say that everything happens for a reason. But as I started talking about the last 12… Continue Reading “Friday Thoughts: Maintaining Change”

Chronic Illness Weekly: New Car & Back to Work

Here’s my latest vlog all about getting my new automatic car and heading back to work and a form of normality after a few crazy months.   If you’d like to support my content please click here for a Audible Audiobooks Free Trial.

Review of Posture Shirt 2.0 by Active Posture Plus Discount Code

Hey Guys, Sorry, It’s been a while since I last stretched my blogging muscles but I wanted to tell you all about this new posture shirt which I was kindly gifted by Active Posture for the Purposes of Review.   Their clothing is the… Continue Reading “Review of Posture Shirt 2.0 by Active Posture Plus Discount Code”