Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
Tag: adventures
Dysautonomia Awareness Month & Recent Vlogs
Posted on November 6, 2017 by Jenni Pettican
Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS….
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Looking for the next right thing 🍂
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📸 The incredible @lousuttonphotography
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I've had a wonderful Frozen day today!
First taking the guides to see the new film and seeing it for the 4th time (twice properly, twice at work) - I'm still not bored and seeing new bits I hadn't noticed before everytime.
Then spent the afternoon with my beautiful ice sister at the little havens hospice Christmas party.
Time for this princess to rest up in front of strictly and get ready to be a new character tomorrow 👸🏻
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#princess #autumn #autumnleaves #Frozen #Frozen2 #Anna #Annacosplay #frozencosplay #frozencostume #essex
Suited and booted!
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So, because I'm mad, I started another new job this week! My first proper 9-5, 'adult' job. Part time, local, perfect...
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However, I already have two other part-time jobs and a full time chronic illness before you think about all the extra stuff I do.
Cue disapproving GIF from @beverleybutterflyxx
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I know I'm very lucky to have found jobs I can do and that I enjoy. I was very scared I wouldn't find anything but, as you can imagine, I'm very sore and tired from working, in one form or another, for the last 5 days and I'm also at work tonight. Something has to give and I can't let it be my body.
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Suit & Shirt - @hm #HMxME
Stick- @neowalksticks
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#suit #suitedup #suitedandbooted #work #job #newjob #firstday #firstdayofwork
#chronicillness #chronicallyill #babewithamobilityaid #disabledandcute #ehlersdanlos #EDS #HSD #POTS #zebra #spoonie #ootd #discoverunder2k
Happy International Day of Persons with Disabilities!
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Disabilities come in so many different forms. Sometimes they will look like this ♿, but this symbol is not representative of disability as a whole.
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The definition of a disability according to the 2010 equality act is: A physical or mental impairment which has a substantial and long-term impact on your ability to carry out normal day-to-day activities.
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A few weeks ago a woman was having a go at me about access difficulties with her elderly father in my workplace and when I said I understood because I also have a disability she looked me up and down and said 'Where?'
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Last week a friend of mine with the same condition as me came out of the accessible bathroom and a woman waiting tutted and said 'She's not even disabled' - the only difference between us, between getting tutted at and not, was I had a visible mobility aid and she didn't.
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Disabilities are very often invisible. There is so much to do to improve the quality of life for disabled people in this country in terms of access, support, employment and so much more but first we just need to be a little kinder to one another.
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📸: @13salh
#disability #disabled #internationldayofpersonswithadisability
#invisibledisabilities #chronicillness #chronicallyill #invisibleillness #access #accessibility #mobilityaids #ehlersdanlos
#disabledandcute #discoverunder2k #selfiefactory @selfiefactory
2 days, 4 princesses 👸🏻💜✨
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Swipe to see them all! 👉🏻 .
I've loved having a blonde day today as Rapunzel & Sleeping Beauty. It's been so long since I've had blonde hair! And I've certainly never had a 5ft braid before 😍
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I've had an incredibly fun weekend and despite my cold getting worse I managed to keep fighting it off, keep my POTS at bay and get through it. I may be sore and tired but very happy.
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Tomorrow it's onto another big adventure but without a costume or wig in sight. It's going to be a very busy week!
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Happy December everyone ❄️💙
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#princess #parties #blonde #blondehair #rapunzel #sleepingbeauty #work #adventures #EDS #HSD #POTS #zebra #spoonie #chronicillness #chronicallyill #invisibleillness
Super cute day @selfiefactoryofficial with my beautiful spoonie sister @13salh
I was determined to not let this stupid cold ruin my day so trusty Wilhelmina the Walker got me safely round bluewater and carried my black friday purchases (oops). And let's not forget my beautiful @neowalksticks stick Bubbles (check out their amazing Black Friday sale to get one of your own)
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Now time for a lot of good rest before a busy weekend of work and a crazy week next week!
Happy Thanksgiving to you all! I'm so thankful for all of you!
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#selfie #selfiefactory #Thanksgiving #blackfriday #shopping #babewithamobilityaid #disabledandcute #spoonie #spooniesisters #EDS #HSD #POTS #zebra #crmo #ehlersdanlos #ehlersdanlossyndrome #chronicpain #chronicillness #chronicallyill #discoverunder2k #differentaidsfordifferentdays #mobilityaids #neowalks #neowalksticks #empoweredbyneowalksticks #cane
Well, there are birthday surprises, and then there are birthday surprises!
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I was told to book last night off work ages ago without anymore information, I had no idea what to expect but there's no way I could've expected to be going to see Hamilton.
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@hanpower_ I cannot thank you enough for such an incredible and generous gift and I'm so grateful to have you in my life 💜💛
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Hamilton is beautifully crafted, precise, piece of art that demands your attention (unless you're the man next to me who was insistent on checking his phone every 2 mins 😡) Lin Manuel Miranda is a lyrical genius and the cast, especially the women, were phenomenal.
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#hamilton #musicals #musicaltheatre #westend #london #accessibletheatre #EDS #HSD #POTS #zebra #spoonie #chronicillness #chronicallyill #ehlersdanlos #spooniesisters #birthday #Surprise @hamiltonwestend @hamiltonmusical
