Spreading Awareness & Helping Others with EDS & POTS
I finally got to see Frozen the musical, almost 2 years after I originally booked it, & it was definitely worth the wait! Here’s my review including access & covid safety information.
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
On a normal year I would normally not even have started my holiday shopping yet and I would be a complete Scrooge to anyone I came across playing holiday music or who had put their Christmas tree up already. Maybe it’s because I have… Continue Reading “Spoonie Holiday Gift Guide”
Something people may not know about me is that I’ve struggled with my mental health for a long time. I’ve been living with anxiety much longer than I’ve been living with the symptoms of my physical conditions; so why do I find it so… Continue Reading “World Mental Health Day”
This is my first September as an adult. ‘Why do you say that Jenni? Aren’t you almost 25?’ That fact is true, so I have supposedly been an adult for 7 years. And although I thought I was ‘all grown up’ at 14 I… Continue Reading “September”
My personal life is something I’ve always kept fairly private but in the world of social media sometimes this can skew the view of what it is like to be in a relationship whilst being diagnosed with a chronic illness. For the readers who… Continue Reading “Relationships & Chronic Illness”
After my successful EDS Survival Kit post some time ago I’ve been meaning to write one for POTS and just never got around to it! Dysautonomia awareness month seemed like the perfect time. A lot of these tips relate to keeping cool as heat… Continue Reading “My POTS Survival Kit: Dysautonomia Awareness Month”
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”