Tag: chronic illness

All That You Can’t See: Living with Ehlers Danlos Syndrome

If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project… Continue Reading “All That You Can’t See: Living with Ehlers Danlos Syndrome”

Friday Thoughts: Different Aids for Different Days

Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”

Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park

Very Busy Week Last Week! Went back to the gym, had 2 hospital appointments (Neurology at Queens & my year follow up from rehab at RNOH) and went on a date day to Thorpe Park and discovered their Ride Access Pass. I also went shopping… Continue Reading “Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park”

Friday Thoughts: Maintaining Change

Nothing is so painful to the human mind as a great and sudden change. -Mary Shelley Change usually ends up being a positive thing, after all, I always say that everything happens for a reason. But as I started talking about the last 12… Continue Reading “Friday Thoughts: Maintaining Change”

Chronic Illness Weekly: New Car & Back to Work

Here’s my latest vlog all about getting my new automatic car and heading back to work and a form of normality after a few crazy months. [youtube https://www.youtube.com/watch?v=LhgIgQzaiBQ]   If you’d like to support my content please click here for a Audible Audiobooks Free… Continue Reading “Chronic Illness Weekly: New Car & Back to Work”

Gluten Free, Vegan Strawberry & Banana Pancakes

So, It’s been a while! But now I’m home from uni I want to go back to the roots of this blog and post more regularly. I will still be uploading weekly vlogs on my Youtube channel but I want to make more videos,… Continue Reading “Gluten Free, Vegan Strawberry & Banana Pancakes”

Dysautonomia Awareness Month & Recent Vlogs

Dysautonomia Awareness Month may be over but Dysautonomia is something people have to live with every day of the year. I made a video last month with 4 other lovely ladies who were all brave enough to share their story about Living with POTS.… Continue Reading “Dysautonomia Awareness Month & Recent Vlogs”

My Invisible Journey – One Chronic Year On!

Firstly, an apology that I’ve been so incredibly quiet on here lately. I’ve been so focused on getting some great videos out there for you guys that I have neglected my blog a little. But as I’ve said it I often so much easier… Continue Reading “My Invisible Journey – One Chronic Year On!”

Adventures with EDS: FriendsFest, Being on TV & Uni Prep

With less than a week until I go back to uni, and as of Thursday I was officially deemed fit to return, it’s been a busy week but at least it has finally been a productive one. Some great highlights included going to friendsfest… Continue Reading “Adventures with EDS: FriendsFest, Being on TV & Uni Prep”

#NationalDogDay Molly & Me

So I’ve been thinking about writing this post for a while but so far haven’t been able to bring myself to do it. Purely, because this means that soon I’m going to have to say ‘see you later’ to my best pal! But first… Continue Reading “#NationalDogDay Molly & Me”