Tag: spoonie

A Trip To Norwich

Posted on May 31, 2017 by

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The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”

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Living With Ehlers Danlos Syndrome #EDSAwarenessMonth

Posted on May 5, 2017 by

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Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”

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7 Things I only do because I have POTS/EDS! #Rarediseaseday

Posted on March 13, 2017 by

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Here’s a video I did for Rare Disease Day (28/02). Sorry I’m a little late putting it up on here but it’s still worth a watch 🙂 Please Subscribe to my Youtube Channel 🙂 [youtube https://www.youtube.com/watch?v=HdlsFdsahFE]

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Spoons for Christmas Please!

Posted on December 23, 2016 by

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This is the 4th time I’ve sat down to try to write and finish this blog post! This has been a ridiculously busy time for me coming up for christmas, as it is for everyone, but I did all my christmas shopping, cards and… Continue Reading “Spoons for Christmas Please!”

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