Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
Category: Uncategorized
Living With Ehlers Danlos Syndrome #EDSAwarenessMonth
Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”
Lentil & Vegetable Bolognese
It’s been a very long time since I did a good old recipe post! Yesterday evening I had an awful headache and a lot of pain in my hip and wasn’t up to cooking the my lentil & vegetable bolognese I had planned because… Continue Reading “Lentil & Vegetable Bolognese”
#EDSAwarenessMonth Project
Hi guys! It has been a super busy week for me with a wedding, Easter, working & a neurology appointment plus I’ve been struck down with an awful cold so, unfortunately, I’m not feeling great and haven’t been able to put out a proper… Continue Reading “#EDSAwarenessMonth Project”
5 Top Tips for Living With POTS!
New video with my Top 5 tips for living with Postural Orthostatic Tachycardia Syndrome! Please subscribe to my youtube channel for more videos about my chronic illnesses. Have a happy Easter everybody 🙂 Spoons & Love xxx [youtube https://www.youtube.com/watch?v=qCboKmTy3P4]
What is POTS?
New Video all about Postural Orthostatic Tachycardia Syndrome (POTS) which also shows you how to do a poor man’s tilt table test. You can subscribe to my youtube channel Here. [youtube https://www.youtube.com/watch?v=txH9mPQ1I7A]
What is Ehlers Danlos Syndrome?
Today has been a bit of a stressful one. I’ve had to call lots of different medical people and am waiting to here back from my GP. I’ve had to sort authorisation for a follow up with my Neurologist, my referral for an ultrasound… Continue Reading “What is Ehlers Danlos Syndrome?”
CSF Leak: My Blood Patch Experience
New video which shows the recovery from my most recent blood patch. Every Blood Patch experience is different and trying to manage having one every month whilst trying to fight my other chronic illnesses has been pretty difficult for me. It’s been 2 weeks… Continue Reading “CSF Leak: My Blood Patch Experience”
Simple Stitch Shortbread
I’ve been thinking about doing this recipe for a while as I used to be obsessed with biscuits and shortbread was my absolute favourite. I used to buy some Tesco everyday value shortbread and munch my way through the whole pack! When I was… Continue Reading “Simple Stitch Shortbread”
CSF Leak: Blood Patch Surgery
I have realised that I talk quite a lot about my Postural Orthostatic Tachycardia Syndrome (POTS) & Ehlers Danlos Syndrome (EDS) but I tend to leave out my Cerebrospinal Fluid Leak (CSF leak), which is funny because it was my bad headaches that started… Continue Reading “CSF Leak: Blood Patch Surgery”