What is POTS?

Posted on April 7, 2017 by

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New Video all about Postural Orthostatic Tachycardia Syndrome (POTS) which also shows you how to do a poor man’s tilt table test. You can subscribe to my youtube channel Here.

Category: Illness, UncategorizedTags: , , , , , ,

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Yesterday I did not get out of bed apart from for meals. I didn't even really do much from bed, didn't even put the TV on. It didn't feel good. . To help me feel better today a friend gave me a challenge to do my makeup like someone I wouldn't usually so here's my little attempt at a poison Ivy look. At the end of the day it didn't matter how good or bad it turned out it mattered that it forced me out of bed, into some clothes, to put make up on and feel a little more human. And in the end that made for a more productive day. . Today I also found out my day job has been furloughed (is that how you spell it 😂) It is totally the best decision for me and for them and does give me the opportunity to rest, focus on me and put some time into my blog and YouTube channel & all the other little projects I've been too busy to start. But it also lead to some conflicting emotions as the past month has been filled with so much loss & pain (more emotional than physical) that the loss of purpose and structure for a while when I was finally finding my rhythm was a little much. . I know from my story yesterday lots of you are struggling to find motivation to do things in this strange time. What can we do to help each other out and stay motivated together? . #makeup #upanddressed #poisonivy #poisonivyinspired #green #ginger #redhead #selfisolation #covid19 #lockdown #motivation #chronicillness #chronicallyill #eds #hsd #POTS #ehlersdanlos #ehlersdanlossyndrome
I did a podcast!! . It was amazing to get back behind the mic and chat to my lovely friends over at spoonie village! . However it is about the worst timing ever because we were chatting all about how to manage university and working with a chronic illness. . It's great for a laugh anyway and you can listen to it wherever good podcasts are listened to and hopefully some people might find it useful when life returns to normal😜 . If you're not already, make sure you give @spoonie_village a follow they are lovely people who do some pretty awesome and very relatable stuff! . #spoonie #podcast #spooniepodcast #chronicillnesspodcast #chronicillness #chronicallyill #chronicpain #chronicfatigue #uni #work #uniwithachronicillness #workingwithachronicillness #POTS #posturalorthostatictachycardiasyndrome #EDS #HSD #ehlersdanlos #ehlersdanlossyndrome #babewithamobilityaid
Today is World theatre day and although I haven't been on a stage in a long while I am so grateful that I'm able to perform as a princess every week. . It's been 2 weeks since I put on a wig and a ballgown and I already miss it so much. I don't know how long it will be before I will get to again but I can't wait for that day. . I'm also very lucky to have met an amazing group of people in my princess friends! . I missing my little bit of magic so to all my party princess friends I'd love to see your #PrincessPortfolioChallenge to bring a bit of magic to everyone's day. I've been 9 princesses in 11 outfits, how many have you been? . #worldtheatreday #performing #princess #princesscosplay #princessgang #princessEmporium #disney #fairytales #disneyprincesscosplay #Snow #Belle #moana #ariel #anna #aurora #Elsa #cinderella #rapunzel #missthis #grateful
'My grandfather was a quiet man, but his silence could speak volumes....In years to come, I may not remember many of the words my grandfather spoke, but the memories of what he conveyed without speaking a word will stay in my heart.' . I will however always remember him telling me I needed to wash my mouth out with soap after my performance as Scaramouche in We Will Rock You. 😂 I'll remember how we'd laugh about you unknowingly wearing the exact same outfit for Easter every year. I'll remember you taking Nanna to dance and that it didn't matter that you were the only ones on the dance floor on our cruise of the British Isles. And I'm glad my final memories of you are happy ones of you singing along to somewhere over the rainbow and some enchanted evening with me even though you could barely say another word. . I may have only got to know one grandfather in my life but I'm very lucky and glad it was you. . Pappy 16.9.29 - 23.3.20
🎶 But I woke up and grew strong, and I can still go on, and no one can take my pearl 🎶 . These are some lyrics from a Katy Perry track called Pearl which I first heard just over 6 years ago and bought myself a pearl ring which I still wear to this day to remember this song and these lyrics. A promise to never become a shell of myself to make someone else happy, whoever that may be and to always be a pearl. . At this uncertain time in my life and in the world, it was wonderful to have this beautiful @marcmirren pearl necklace sent to me just when I needed it the most. This is from their Parlan collection which is simple and elegant jewellery featuring classic pearls in a modern way. Might be treating myself to the Halo hoop earrings next! . They've also been kind enough to give me a 15% off discount code for you guys to use on their website if you find something you love. Just use code: JENNI15 . What is something reminds you to not lose yourself in the craziness of this world? . #gifted #pearl #marcmirren #jewelry #jewellery #detailsbyMM #sweden #selfie #redhead #ginger #necklace #katyperry #parlan #chronicillness #chronicallyill
Throwing back to 2 weeks ago when my little corner of the world was a completely different place. . I went to work got home put on my new dress and went for a night out with my friends from my old job for our very belated Christmas party. I'll admit that was a lot for a spoonie in one day 😂 . Now I've not left my house (apart from a short walk yesterday) in 8 days and our workplaces have closed leaving us with total uncertainty. . Its so scary to see how much has changed in 2 weeks. It's okay to be scared. We are all in this together but we do all have fears of our own and each one of those is valid however big or small. . In a funny way having chronic illnesses has prepared me for isolation so I'm sat here on day 8 not feeling too unusual but I'm watching some you guys on day 2 or 3 freaking out. . Find time to breathe, to put away your phone and turn off the news, learn a new skill or find a new hobby and call & facetime your friends & family because it so important to see their faces and hear their voices. Try to take it one day at a time. . As always my inbox is always open and I'm only a message away. . All the Spoons & Love 🥄💜 . #selfisolation #selfcare #selflove #selfie #ginger #change #chronicillness #chronicallyill #ehlersdanlos #eds #hsd #POTS #babewithamobilityaid #disabledandcute #throwback #throwbackThursday
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