What is POTS?

Posted on April 7, 2017 by

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New Video all about Postural Orthostatic Tachycardia Syndrome (POTS) which also shows you how to do a poor man’s tilt table test. You can subscribe to my youtube channel Here.

Category: Illness, UncategorizedTags: , , , , , ,

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Being Sleeping Beauty really makes me miss being blonde! ✨ I love being Aurora way more than I ever thought I would, maybe the chronic fatigue means I relate 😂 Thankfully I'm feeling much better than earlier in the week but still exhausted so I'm back in my very appropriate sleeping beauty Pjs so I can rest up ready to face Monday 💗 . How's your weekend been? . #princess #sleepingbeauty #Aurora #chronicillness #chronicfatigue #fatigue #princesscosplay #disneyprincess #disneyprincesscosplay #auroracosplay #blonde #fairytales
'When you hear hoofbeats, think horses, not zebras' . This is a phrase medical professionals are taught during their training which means to look for the most straightforward answer to a problem rather than assuming a symptom means something rare and complex. But there are Zebras out there but this phrase is the reason that it often takes many years for zebras to be correctly diagnosed. . Ehlers Danlos Syndromes and Hypermobility Spectrum Disorder are a group of connective tissue disorders which can effect multiple systems throughout the body. New research is currently being done into hEDS & HSD but diagnosis and management can be extremely difficult. A lot of the time this is because it's an invisible condition causing chronic pain, frequent joint problems including dislocations and major fatigue not to mention the co-morbid contions many of us battle with. . I've teamed up with @artist_nicholeparee @watercolor_me_impressed @hotpinksun to spread some awareness for the condition we all share and how you can never tell how much someone might be suffering just by how they look. . For more info on EDS please head to @ehlers.danlos @ehlersdanlosuk or @mindbodyeds and you can also check out my YouTube channel. . #EDS #HSD #POTS #zebra #spoonie #chronicillness #chronicallyill #ehlersdanlos #ehlersdanlossyndrome #EDSawareness #hypermobility #hypermobilityspectrumdisorder #butyoudontlooksick #invisibledisability #invisibleillness
I don't feel so good. . I had a hospital appointment yesterday so I had to move my work days around and that seemingly small thing has thrown my whole week and my whole body off balance. . I got to my usual gym session today tired and having trouble with a shoulder thinking I'd be fine but it was clear just how weak I was feeling as I really struggled with things I usually find relatively easy. . My body has been good to me recently and I was so upset and frustrated by how much it was letting me down for no good reason. I've been making it to work but feeling so behind on all the other things I want to achieve including something as simple as being able to see my friends. . As I was discussing with my OT yesterday I know I'm still recovering from pre-Christmas & '3 jobs Jenni' plus going straight into 9-5 even just 2 days a week has probably had a bigger impact than I'd realised but hopefully I can start implementing so things to improve that. . Sorry for the rant, it's been a bit of a rough week. I hope that having slept for most of the afternoon things might improve tomorrow. Obviously this week's video, which is already late, will be quite late and I may be slow on my messages. I just wanted to take a second to remind people that the ones who 'look' like they might have things together may be struggling more than you realise. . Spoons & Love 🥄 💜 . P. S Don't you love mini Anna?! Mike one her for me on a crane machine to make me feel better after a rough afternoon yesterday x . #chronicillness #chronicallyill #ehlersdanlos #ehlersdanlossyndrome #POTs #posturalorthostatictachycardiasyndrome #posturaltachycardiasyndrome #chronicpain #chronicfatigue #EDS #HSD #zebra #spoonie #lowspoons #chronicfatiguesyndrome #butyoudontlooksick #Frozen2 #Anna
Tale as old as time 💛 🌹 #belle #BeautyAndTheBeast #princess #bellecosplay #princesscosplay #disneyprincess #disneyprincesscosplay #fairytales
When you instantly regret wearing your 'do your squats' top to your personal training session 😂 . It's been 2 days and I'm still extremely sore 😂 . It's been extremely slow progress but I do remember the times 4 years ago when I could barely do a 'sit to stand' without dizziness, extra pain and weakness so the fact I'm squatting with (very light) weights on my shoulders is the reason I'm smiling in this picture. . I've noticed my feed has become very full of gym & princess posts recently which is great. It looks like I'm doing amazingly well but I want to remind people that it's not the full picture! Just like you don't see the days at my 'other' job, you also don't see my days off where I barely move from bed. Head to my vlogs to get a more well rounded picture 💜🦓 @energiefitnessbasildon @carol_ann_pt @mylkplus #squats #SassSquad #legday #gym #EDS #HSD #POTS #zebra #spoonie #chronicillness
Such a beautiful party yesterday for two beautiful little princesses 💜 I love my job so much! #princess #princessparty #rapunzel #longhairdontcare #rapunzelcosplay #princesscosplay
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