Tag: spoonie
Posted on November 26, 2020
by Chronically Jenni
110 Comments
On a normal year I would normally not even have started my holiday shopping yet and I would be a complete Scrooge to anyone I came across playing holiday music or who had put their Christmas tree up already. Maybe it’s because I have… Continue Reading “Spoonie Holiday Gift Guide”
Category: Illness, UncategorizedTags: christmas, christmas gift guide, christmas gifts, chronic fatigue, chronic illness, chronic illness gift guide, chronic pain, chronically ill, chronically jenni, gift guide, holiday gift, small business, spoonie, what to buy for someone with a chronic illness
Posted on October 18, 2019
by Chronically Jenni
117 Comments
‘You look so well’ It’s a phrase I absolutely dread hearing. The last time I remember hearing it was at my mum’s 60th birthday. Earlier in the day friends and neighbours may have spotted me leaving the house with my walker to get on… Continue Reading “Friday Thoughts: Invisible Disabilities Week”
Category: UncategorizedTags: chronic illness, chronically ill, disability, eds, ehlers-danlos, friday thoughts, Illness, invisible, invisible disabilities, invisible disabilities week, invisible illness, pain, pots, spoonie
Posted on September 28, 2019
by Chronically Jenni
2 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on August 23, 2019
by Chronically Jenni
25 Comments
Recently I’ve had a lot of questions from friends, colleagues and spoonie’s alike about my mobility aids. From how I started using them and accepting them as part of my life to why I do, or don’t, need them from one day to the… Continue Reading “Friday Thoughts: Different Aids for Different Days”
Category: Illness, UncategorizedTags: babe with a mobility aid, chronic illness, chronically ill, different aids for different days, disability, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, mobility aid, mobility aids, pots, spoonie, walker, walking stick, wheelchair, zebra
Posted on December 22, 2017
by Chronically Jenni
1 Comment
Happy December Everyone Sorry I’ve been super quiet on here but a lot has been going on! If you’ve missed it you can see what I’ve been getting up to every day throughout December over on my Youtube channel where this year I’ve got… Continue Reading “Spoonie Vlogmas!”
Category: Illness, UncategorizedTags: christmas, December, eds, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, living with pots, postural orthostatic tachycardia syndrome, pots, spoonie, Vlogmas, zebra
As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”
Category: Illness, UncategorizedTags: bag, chronic fatigue, chronic illness, chronic migraine, chronic pain, cruise, edition, eds, ehlers-danlos, ehlers-danlos syndrome, fatigue, headache, holiday, Illness, migraine, pain, postural orthostatic tachycardia syndrome, pots, spoonie, suitcase, vacation, whats in my bag
I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic migraine, chronic pain, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, guilt, mental health, pacing, postural orthostatic tachycardia syndrome, pots, spoonie, update, zebra, zebras
Posted on June 20, 2017
by Chronically Jenni
2 Comments
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
Posted on June 12, 2017
by Chronically Jenni
7 Comments
Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful! [youtube… Continue Reading “What’s in my Bag?! Spoonie Handbag Edition”
Category: Illness, UncategorizedTags: bag, chronic fatigue, chronic illness, chronic migraine, chronic pain, eds, ehlers-danlos, ehlers-danlos syndrome, grey, in, my, postural orthostatic tachycardia syndrome, pots, spoonie, what's, whats in my bag, zebra
Posted on June 1, 2017
by Chronically Jenni
3 Comments
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
Category: Illness, UncategorizedTags: #zebrastrong, avon, ceds, chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, hypermobile, hypermobility, pyjamas, slippers, spoonie, veds, zebra, zebras