Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
Tag: postural orthostatic tachycardia syndrome
A Trip To Norwich
The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”
24 Hours of EDS || a day in my life
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
5 Top Tips for Living With POTS!
New video with my Top 5 tips for living with Postural Orthostatic Tachycardia Syndrome! Please subscribe to my youtube channel for more videos about my chronic illnesses. Have a happy Easter everybody 🙂 Spoons & Love xxx [youtube https://www.youtube.com/watch?v=qCboKmTy3P4]
What is POTS?
New Video all about Postural Orthostatic Tachycardia Syndrome (POTS) which also shows you how to do a poor man’s tilt table test. You can subscribe to my youtube channel Here. [youtube https://www.youtube.com/watch?v=txH9mPQ1I7A]
What is Ehlers Danlos Syndrome?
Today has been a bit of a stressful one. I’ve had to call lots of different medical people and am waiting to here back from my GP. I’ve had to sort authorisation for a follow up with my Neurologist, my referral for an ultrasound… Continue Reading “What is Ehlers Danlos Syndrome?”
CSF Leak: My Blood Patch Experience
New video which shows the recovery from my most recent blood patch. Every Blood Patch experience is different and trying to manage having one every month whilst trying to fight my other chronic illnesses has been pretty difficult for me. It’s been 2 weeks… Continue Reading “CSF Leak: My Blood Patch Experience”
CSF Leak: Blood Patch Surgery
I have realised that I talk quite a lot about my Postural Orthostatic Tachycardia Syndrome (POTS) & Ehlers Danlos Syndrome (EDS) but I tend to leave out my Cerebrospinal Fluid Leak (CSF leak), which is funny because it was my bad headaches that started… Continue Reading “CSF Leak: Blood Patch Surgery”
To The Customer Who Judged Me For Sitting Down On The Job.
This is another piece I’ve just had published on the Mighty which I wanted to share with you. After working in the retail sector for as long as I have, I’ve learned that customers are inquisitive and tend to point out when something is different. In my… Continue Reading “To The Customer Who Judged Me For Sitting Down On The Job.”
7 Things I only do because I have POTS/EDS! #Rarediseaseday
Here’s a video I did for Rare Disease Day (28/02). Sorry I’m a little late putting it up on here but it’s still worth a watch 🙂 Please Subscribe to my Youtube Channel 🙂 [youtube https://www.youtube.com/watch?v=HdlsFdsahFE]