Posted on September 28, 2019
by Chronically Jenni
2 Comments
It’s strange to think, as I sit here in bed in my most comfortable tracksuit with a bloated tummy and sore head, that this time last week I was sat down for a 3-course dinner in a beautiful cathedral, which looked like it had… Continue Reading “Friday Thoughts: The National Diversity Awards”
Category: Illness, UncategorizedTags: awards, chronic illness, disability, diversity, eds, ehlers-danlos, ehlers-danlos syndrome, hsd, hypermobility, Illness, liverpool, national diversity awards, paul sesay, pots, role model, sally phillips, spoonie, vlogger, zebra
Posted on June 20, 2017
by Chronically Jenni
2 Comments
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
Posted on June 1, 2017
by Chronically Jenni
3 Comments
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
Category: Illness, UncategorizedTags: #zebrastrong, avon, ceds, chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, hypermobile, hypermobility, pyjamas, slippers, spoonie, veds, zebra, zebras
Posted on March 13, 2017
by Chronically Jenni
1 Comment
This is another piece I’ve just had published on the Mighty which I wanted to share with you. After working in the retail sector for as long as I have, I’ve learned that customers are inquisitive and tend to point out when something is different. In my… Continue Reading “To The Customer Who Judged Me For Sitting Down On The Job.”
Category: Illness, UncategorizedTags: back pain, blood patch, chronic fatigue, chronic illness, chronic pain, csf leak, eds, ehlers-danlos syndrome, hypermobility, mobility aids, postural orthostatic tachycardia syndrome, pots, spinal surgery, work
Posted on October 30, 2016
by Chronically Jenni
4 Comments
Wow, it’s been a while! My excuse for not having posted anything in such a long time was going to be that I haven’t been very well, but , of course, that’s a bit of a rubbish excuse, seen as, I wouldn’t have ever… Continue Reading “My Invisible Journey”
Category: Illness, UncategorizedTags: awareness, chronic, chronic illness, dairy free, disability, dysautonomia, eds, ehlers-danlos, ehlers-danlos syndrome, food, gluten free, hypermobility, Illness, invisible, physio, postural orthostatic tachycardia syndrome, pots, refined sugar free