Tag: headache

What’s in my bag?! Cruise holiday spoonie suitcase edition

Posted on June 30, 2017 by Chronically Jenni

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my… Continue Reading “What’s in my bag?! Cruise holiday spoonie suitcase edition”

Category: Illness, UncategorizedTags: bag, chronic fatigue, chronic illness, chronic migraine, chronic pain, cruise, edition, eds, ehlers-danlos, ehlers-danlos syndrome, fatigue, headache, holiday, Illness, migraine, pain, postural orthostatic tachycardia syndrome, pots, spoonie, suitcase, vacation, whats in my bag

24 Hours of EDS || a day in my life

Posted on May 13, 2017 by Chronically Jenni

241 Comments

Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”

Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube

Chronically Jenni

Tag: headache

What’s in my bag?! Cruise holiday spoonie suitcase edition

24 Hours of EDS || a day in my life

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