Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
Category: Illness, UncategorizedTags: #zebrastrong, avon, ceds, chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, hypermobile, hypermobility, pyjamas, slippers, spoonie, veds, zebra, zebras
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube
Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”
Category: Illness, UncategorizedTags: #edsawarenessmonth, awareness, blog, chronic fatigue, chronic illness, chronic pain, collaboration, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, living with, living with eds, may, month, project, spoonie, video, vlog, youtube, zebra, zebras
Posted on April 28, 2017
by Chronically Jenni
1 Comment
[youtube https://www.youtube.com/watch?v=TrnsjQVtZUg]
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos syndrome, events, postural orthostatic tachycardia syndrome, pots, wedding
Hi guys! It has been a super busy week for me with a wedding, Easter, working & a neurology appointment plus I’ve been struck down with an awful cold so, unfortunately, I’m not feeling great and haven’t been able to put out a proper… Continue Reading “#EDSAwarenessMonth Project”
Category: Illness, UncategorizedTags: #edsawarenessmonth, 2017, awareness, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, may, spoons, zebra, zebras