Spreading Awareness & Helping Others with EDS & POTS
The Holidays are coming and the Black Friday deals have already begun and for me that means it’s time to get my Christmas Shopping sorted! So whether you’re a spoonie writing your wishlist or looking for a great gift for a chronically ill loved… Continue Reading “Chronic Illness Holiday Gift Guide”
On a normal year I would normally not even have started my holiday shopping yet and I would be a complete Scrooge to anyone I came across playing holiday music or who had put their Christmas tree up already. Maybe it’s because I have… Continue Reading “Spoonie Holiday Gift Guide”
This is my first September as an adult. ‘Why do you say that Jenni? Aren’t you almost 25?’ That fact is true, so I have supposedly been an adult for 7 years. And although I thought I was ‘all grown up’ at 14 I… Continue Reading “September”
My personal life is something I’ve always kept fairly private but in the world of social media sometimes this can skew the view of what it is like to be in a relationship whilst being diagnosed with a chronic illness. For the readers who… Continue Reading “Relationships & Chronic Illness”
September is coming to a close. This month has brought the feeling of new beginnings as little ones head back to school and an autumnal chill fills the air. I know for sure that I’ve already curled up in a blanket and lit a… Continue Reading “Pain Awareness Month: A Letter to Pain”
Over the past few years, I have found so many amazing products and hacks to help me with different aspects of my connective tissue disorder (Ehlers Danlos Syndrome). Some of these things are quite specific to EDS but others would be helpful for a… Continue Reading “My EDS Survival Kit (Part 1)”
If I’d have had to write my final university project two years ago, when I was part of the class of 2017, I couldn’t tell you what I’d have written about, since going back to university I always knew that I wanted my project… Continue Reading “All That You Can’t See: Living with Ehlers Danlos Syndrome”
Very Busy Week Last Week! Went back to the gym, had 2 hospital appointments (Neurology at Queens & my year follow up from rehab at RNOH) and went on a date day to Thorpe Park and discovered their Ride Access Pass. I also went shopping… Continue Reading “Chronic Illness Weekly: Back to the Gym, Hospital Appointments & Thorpe Park”
Nothing is so painful to the human mind as a great and sudden change. -Mary Shelley Change usually ends up being a positive thing, after all, I always say that everything happens for a reason. But as I started talking about the last 12… Continue Reading “Friday Thoughts: Maintaining Change”
Here’s my latest vlog all about getting my new automatic car and heading back to work and a form of normality after a few crazy months. [youtube https://www.youtube.com/watch?v=LhgIgQzaiBQ] If you’d like to support my content please click here for a Audible Audiobooks Free… Continue Reading “Chronic Illness Weekly: New Car & Back to Work”