Adventures with EDS

Hey Guys!

Sorry it’s been so long since I’ve done a proper blog post! I’ve been so so busy the last couple of months I don’t think I’ve really stopped. And of course, when I’ve finally managed to stop, I’ve not been feeling too well. If you want to catch up on the things I’ve been up to I have been doing a weekly vlog called Adventures With EDS. I promise I will do some proper blog posts soon when I get some time which coincides with enough energy and focus to write. There’s one I’m planning at the moment all about my going back to uni with chronic illnesses wish list, so stay tuned for that. For now here are my most recent Adventures with EDS videos for you 🙂 Hope you enjoy them and I’d love it if you’d subscribe to my youtube channel.

Cruise Holiday Vlog! Adventures with EDS

Part of the Adventures with EDS series, this vlog lets you come on holiday with me on our first cruise. Join me and my boyfriend, Mike, as we set off on our first holiday for 3 years and sail to La Rochelle in France, Bilbao in Spain & St Peter Port in Guernsey on P&O ‘s Ventura. This holiday was a 21st Birthday gift from my Mum & Mike that I’ve been looking forward to since November! See me dealing with my POTS ( Postural Orthostatic Tachycardia Syndrome ) , EDS ( Ehlers Danlos Syndrome ), Migraine & Food intolerance ( Gluten free, Dairy free, Refined Sugar free, Caffeine & Alcohol Free ) plus face the heat as we find out just how good cruising is for someone with a disability and/or chronic illness. We play bingo, lounge around the pool, dress up for the formal nights, watch brilliant entertainment on the ship and eat, a lot! We wheel, sail and walk (hobble) around our various ports of call. You’ll get a tour of our little state room and see what there is to do on a cruise ship. Thanks for watching 🙂

If you liked this video please subscribe to my channel 🙂 It would mean so much to me 🙂

What’s in my bag?! Cruise holiday spoonie suitcase edition

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my illnesses have really caused me problems so it’s also a little daunting. Hopefully you enjoy seeing what I’ve packed and are looking forward to my upcoming holiday vlog.

Heart to Heart: Chronic Illness Update

I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a video instead to try and update you on my battle with chronic illness so far and the fight I’m currently trying to win to in regards to getting my pain down and the challenges I face with pacing, guilt and coping mentally as well as physically. I was pretty fatigued when I was filming this so hopefully the point comes across. Love & Spoons to you all. It gets tough at times but we can do this!

EDS Awareness Bundle Giveaway

Hey Guys!

EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes all these amazing EDS awareness prizes and I’m super excited to be a part of it 🙂

This slideshow requires JavaScript.

This amazing prize includes: Zebra Ribbon Decals, an EDS ribbon necklace from Kat Makes Stuff, an EDS awareness tee, 3 EDS lapel ribbons, 10 lemon challenge cards, 10 EDS fact cards, 3 EDS awareness bracelets and an EDS awareness mug.

All you have to do to be in with the chance of winning this awesome prize package is enter here:
a Rafflecopter giveaway

Unfortunately, due to high shipping costs this giveaway is only open to all you lovely people who live in the USA and Canada. Anyone else will have to pay shipping costs. Your email will only be used to notify you if you win. All entries will be verified. The prize opens on 20th June 2017 and closes on 27th June 2017. Good Luck!!

Co-hosts:

Hannah from Sunshine and Spoons 

Sarah from My Stripy Life 

Brittany from A Southern Celiac 

Sara at Zebra Writes

Jenni at 1nvisibl3Girl 

Mary at The Headache Heroine 

What’s in my Bag?! Spoonie Handbag Edition

Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!

Avon Haul

Bit of a different video for me. I recently became an Avon rep and wanted to share some of their awesome products with you. Let me know what you think! For all my zebras, I’m still selling Zebra PJs & Slippers and am donating 5% to EDS UK, Get your orders in! If you like anything you can order with me online at avon.uk.com/store/shop-with-jenni