Category: Illness
I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a… Continue Reading “Heart to Heart: Chronic Illness Update”
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic migraine, chronic pain, disabled, eds, ehlers-danlos, ehlers-danlos syndrome, guilt, mental health, pacing, postural orthostatic tachycardia syndrome, pots, spoonie, update, zebra, zebras
Posted on June 20, 2017
by Chronically Jenni
24 Comments
Hey Guys! EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes… Continue Reading “EDS Awareness Bundle Giveaway”
Category: Illness, UncategorizedTags: awareness, blog, bloggers, bundle, ceds, chronic fatigue, chronic illness, chronic pain, competition, disability, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, giveaway, heds, hypermobility, Illness, prize, spoonie, spoons, veds, win, zebra, zebras
Posted on June 12, 2017
by Chronically Jenni
17 Comments
Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful! [youtube… Continue Reading “What’s in my Bag?! Spoonie Handbag Edition”
Category: Illness, UncategorizedTags: bag, chronic fatigue, chronic illness, chronic migraine, chronic pain, eds, ehlers-danlos, ehlers-danlos syndrome, grey, in, my, postural orthostatic tachycardia syndrome, pots, spoonie, what's, whats in my bag, zebra
Posted on June 3, 2017
by Chronically Jenni
4 Comments
The Lovely Georgina over at Georgina’s Journey tagged me to do the TMI tag so I could tell you all a little more about myself outside of my Chronic Illnesses. So here’s me answering 50 questions so you can found out some facts about… Continue Reading “TMI Tag!”
Category: Illness, UncategorizedTags: blog, chronic illness, eds, ehlers-danlos, ehlers-danlos syndrome, postural orthostatic tachycardia syndrome, pots, tag, tmi, tmi tag, vlog, youtube
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going,… Continue Reading “Zebra PJs!”
Category: Illness, UncategorizedTags: #zebrastrong, avon, ceds, chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, heds, hsd, hypermobile, hypermobility, pyjamas, slippers, spoonie, veds, zebra, zebras
The thought of heading back to uni in September has been extremely daunting for me. I struggle every day with my EDS & POTS whilst not doing very much and with so much help from my amazing mum! How will I cope on my… Continue Reading “A Trip To Norwich”
Category: Illness, UncategorizedTags: blog, chronic fatigue, chronic illness, chronic pain, Degree, disability, Drama, eds, ehlers-danlos syndrome, friends, Illness, Norwich, Norwich Vegan Festival, postural orthostatic tachycardia syndrome, pots, spoonie, spoonies sisters, UEA, university, Vegan, vlog, zebras
Living with a chronic illness is a 24/7 job where you never get a day off. This video shows you a fairly typical day in my life. Ehlers Danlos Syndrome is different for everyone so I wanted to share with you what EDS is… Continue Reading “24 Hours of EDS || a day in my life”
Category: Illness, UncategorizedTags: #edsawarenessmonth, #thisismyeds, 24 hours, a dogs purpose, blue badge, chronic fatigue, chronic illness, chronic migraine, chronic pain, day, day in the life, disability, disabled, dog, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, headache, life, living, migraine, postural orthostatic tachycardia syndrome, pots, video, vlog, youtube
Happy May Everyone! You know what that means? It’s EDS Awareness Month! I was diagnosed with Ehlers Danlos Syndrome last February and it’s been a long battle ever since. I started off by fighting the comorbities that come with EDS, for me that’s POTS… Continue Reading “Living With Ehlers Danlos Syndrome #EDSAwarenessMonth”
Category: Illness, UncategorizedTags: #edsawarenessmonth, awareness, blog, chronic fatigue, chronic illness, chronic pain, collaboration, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, living with, living with eds, may, month, project, spoonie, video, vlog, youtube, zebra, zebras
Posted on April 28, 2017
by Chronically Jenni
1 Comment
[youtube https://www.youtube.com/watch?v=TrnsjQVtZUg]
Category: Illness, UncategorizedTags: chronic fatigue, chronic illness, chronic pain, eds, eds awareness month, ehlers-danlos syndrome, events, postural orthostatic tachycardia syndrome, pots, wedding
Hi guys! It has been a super busy week for me with a wedding, Easter, working & a neurology appointment plus I’ve been struck down with an awful cold so, unfortunately, I’m not feeling great and haven’t been able to put out a proper… Continue Reading “#EDSAwarenessMonth Project”
Category: Illness, UncategorizedTags: #edsawarenessmonth, 2017, awareness, eds, eds awareness month, ehlers-danlos, ehlers-danlos syndrome, may, spoons, zebra, zebras