Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
Month: March 2017
CSF Leak: My Blood Patch Experience
New video which shows the recovery from my most recent blood patch. Every Blood Patch experience is different and trying to manage having one every month whilst trying to fight my other chronic illnesses has been pretty difficult for me. It’s been 2 weeks… Continue Reading “CSF Leak: My Blood Patch Experience”
Simple Stitch Shortbread
I’ve been thinking about doing this recipe for a while as I used to be obsessed with biscuits and shortbread was my absolute favourite. I used to buy some Tesco everyday value shortbread and munch my way through the whole pack! When I was… Continue Reading “Simple Stitch Shortbread”
CSF Leak: Blood Patch Surgery
I have realised that I talk quite a lot about my Postural Orthostatic Tachycardia Syndrome (POTS) & Ehlers Danlos Syndrome (EDS) but I tend to leave out my Cerebrospinal Fluid Leak (CSF leak), which is funny because it was my bad headaches that started… Continue Reading “CSF Leak: Blood Patch Surgery”
To The Customer Who Judged Me For Sitting Down On The Job.
This is another piece I’ve just had published on the Mighty which I wanted to share with you. After working in the retail sector for as long as I have, I’ve learned that customers are inquisitive and tend to point out when something is different. In my… Continue Reading “To The Customer Who Judged Me For Sitting Down On The Job.”
7 Things I only do because I have POTS/EDS! #Rarediseaseday
Here’s a video I did for Rare Disease Day (28/02). Sorry I’m a little late putting it up on here but it’s still worth a watch 🙂 Please Subscribe to my Youtube Channel 🙂 [youtube https://www.youtube.com/watch?v=HdlsFdsahFE]