Adventures with EDS: Friends, Frustration & Family Holidays

In this episode of Adventures with EDS; Everything gets a little muddled because lots of the bits I filmed ended up having no sound. But I get a new phone, See 4 of my best friends in the same week, get frustrated with university and the doctors and go on a caravan holiday to Great Yarmouth with my boyfriend Mike and his family. Due to my niece and nephews running around I didn’t really get to film much. Normality with proceed this week. I also go and see the first film in our newly refurbished screen 12 at work and did notice that Tom Cruise’s teeth aren’t symmetrical. I get my eyebrows done as a treat for keeping my trichotillomania at bay.

#NationalDogDay Molly & Me

So I’ve been thinking about writing this post for a while but so far haven’t been able to bring myself to do it. Purely, because this means that soon I’m going to have to say ‘see you later’ to my best pal!

But first some context: I always used to be scared of dogs! I never really knew anyone that had a dog when I was growing up and when a primary school friend’s Greyhound jumped up on my lap when I was about 6, I was completely put off! I had a lovely cat at my dad’s who I loved, so I was a cat person.

As I got older I got much less scared of dogs. Today, I don’t know how I was ever scared of these beautiful, intelligent creatures, these days I say hello to some of the biggest dogs in the park. But I started seeing more smaller dogs and became happier around them. My Aunt got a frenchie followed by another one 3 years later and cute images of puppies all over the internet had me wanting a dog. I went to uni as was far too distracted to think about it again, until I got sick. My human friends began disappearing as I got sicker and eventually had to leave uni. And I can’t pinpoint the exact moment I started begging for a dog of my own but it happened. But my mum, who has never been into pets, would not budge. I constantly saw a mixture of adorable puppies and brilliant service dogs across my instagram feed and wanted in. Two Christmases ago, my mum made a discovery that she could live with and it was called Borrow My Doggy. Basically a website where, for ยฃ10 for the year, you can look after other peoples dogs whilst they were at work or on holiday. I signed up immediately and spent several months searching and sending messages but with no luck. It had got to March and I had given up looking and hoping, until one day when a lady messaged me saying she had a 5 month

img_9270old cockapoo who she had got as a Christmas present from her partner and spent everyday home alone whilst they were at work. This puppy was the most adorable, white, puffball I’d ever seen. So Mum and I went to meet them and I fell a little bit in love!

Molly was cheeky and, as yet, unhousetrained and there was a battle each morning to get her harness on without her chewing it to pieces, a problem which was eventually resolved with age, but we had each other. For me, she gave me purpose, something to do on the days I would’ve been doing nothing and would’ve stayed in bed and moped. She stopped me getting further stuck into the mess of deconditioning. She’s pretty much the reason I have any strength left in my legs. But for me, and Molly, it stopped our loneliness. We both had a new best pal that didn’t judge or care. We were just happy to have each other. She became my best friend.

She cheers me up whenever I feel down, we both love cuddles, often being my living teddy bear and keeps me active. We walk, we play, we go and meet everyone and anyone

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at the park. I’ve had to feed her some very interesting things, Tripe being the most notable, I never want to have to smell that again! We’ve had adventures at the beach and had lots of fun with a hose and paddling pool in the garden. I spent the morning of my 21st birthday with her and my family. And she has visited my nans and kept her wonderful nature when my balinese baby cousin tried to sit on her ๐Ÿ˜› I’ve watched her grow from a little, fluffy puppy to a beautiful adult dog. I know her quirks and charms, and to never let any kind of paper get within a inch of her. I’ve taught her bit and bobs along the way. I taught her to twirl and to high five, one afternoon I spent hours teaching her to roll over but she’s never been able to do it again ๐Ÿ˜›

We can communicate with each other even though we don’t speak the same language. She can seem to understand when I need a rest and will come a sit on my lap in the park despite other dogs being around. She has been a better friend to me than many of my own species. Sheย may not have much of a choice but she is always pleased to see me when I come through the door. She kept me going. She’s kept me hungry to keep improving, after my operations I was longing to get up and get going so I could see Molly.ย 16388831_10154579550174900_141217930_o

 

 

Having looked after Molly for 18 months, I met a lady from a dog walking company and,ย because of the wonderful experience Molly has given me, got a little job walking and dog sitting on the side too. I’ve looked after Labrador crosses, frenchies, terriers and bichons. I’ve gained so much experience in looking after animals and working with owners. Though, I will never feel the same way about the other dogs I look after, It’s built my confidence and extended my love of animals even further.

15032688_10154315163714900_8677166267757778267_nI’m writing this as I realised this week, I only have 2 days left looking after Molly before I go back to uni. Her lovely owner has already said I’m always welcome to come back in the holidays but having looked after her 4 days a week for so long it will be weird not to go round most days. I’ll miss the hilarious text messages I exchange with her owner mostly about her toilet habits ๐Ÿ˜› I will miss her a lot. She’s my comfort and my activity. She’s my best friend. I hate to think where I would be if we had never have met. As Molly will have others looking after her, I am sure I will find other dogs to borrow in Norwich if I can fit them round my schedule. But Molly will always have a special place in my heart as the beautiful puppy (she’s never really grown up to me) who kept me going through the most difficult time in my life.

Love you Molly Moo x

A huge thank you goes to Borrow My Doggy for being able to connect animal lovers to lonely pets. I highly recommend signing up whether you are an owner or a borrower. It has changed my life, kept me happy, kept me sane, and kept me as strong and well as I can be. Dogs are so loving a can be a great stress reliever giving you exercise and comfort. So even is you aren’t in a place, which I, if I’m honest, am not, to have you own dog you can gain a lot from it. My mental health has definitely been so much better with Molly around. And for owners who aren’t always around, not only are you making your dog happier, and often much less naughty, with some company, but giving someone a wonderful opportunity. I will forever be grateful to Molly’s owner, Michelle, for letting me borrow her!

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It’s been Pawsome! โค

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Adventures with EDS: Zebras at the Zoo and more.

In this episode of Adventures with EDS I find out what happens when the adrenaline of sitting in a scary movie at work interacts with POTS, have several very bad migraine episodes with bloating and nausea and go on a day out to Colchester Zoo with Mike seeing loads of amazing animals including Zebras of course, both medical and real :P. I also take a trip to costco and show you my little haul and talk about Mike’s disappearing bag and head to southend for a night out with new friends.

If you liked this video please subscribe to my channel ๐Ÿ™‚

Adventures with EDS

Hey Guys!

Sorry it’s been so long since I’ve done a proper blog post! I’ve been so so busy the last couple of months I don’t think I’ve really stopped. And of course, when I’ve finally managed to stop, I’ve not been feeling too well. If you want to catch up on the things I’ve been up to I have been doing a weekly vlog called Adventures With EDS. I promise I will do some proper blog posts soon when I get some time which coincides with enough energy and focus to write. There’s one I’m planning at the moment all about my going back to uni with chronic illnesses wish list, so stay tuned for that. For now here are my most recent Adventures with EDS videos for you ๐Ÿ™‚ Hope you enjoy them and I’d love it if you’d subscribe to my youtube channel.

Cruise Holiday Vlog! Adventures with EDS

Part of the Adventures with EDS series, this vlog lets you come on holiday with me on our first cruise. Join me and my boyfriend, Mike, as we set off on our first holiday for 3 years and sail to La Rochelle in France, Bilbao in Spain & St Peter Port in Guernsey on P&O ‘s Ventura. This holiday was a 21st Birthday gift from my Mum & Mike that I’ve been looking forward to since November! See me dealing with my POTS ( Postural Orthostatic Tachycardia Syndrome ) , EDS ( Ehlers Danlos Syndrome ), Migraine & Food intolerance ( Gluten free, Dairy free, Refined Sugar free, Caffeine & Alcohol Free ) plus face the heat as we find out just how good cruising is for someone with a disability and/or chronic illness. We play bingo, lounge around the pool, dress up for the formal nights, watch brilliant entertainment on the ship and eat, a lot! We wheel, sail and walk (hobble) around our various ports of call. You’ll get a tour of our little state room and see what there is to do on a cruise ship. Thanks for watching ๐Ÿ™‚

If you liked this video please subscribe to my channel ๐Ÿ™‚ It would mean so much to me ๐Ÿ™‚

What’s in my bag?! Cruise holiday spoonie suitcase edition

As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my illnesses have really caused me problems so it’s also a little daunting. Hopefully you enjoy seeing what I’ve packed and are looking forward to my upcoming holiday vlog.

Heart to Heart: Chronic Illness Update

I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a video instead to try and update you on my battle with chronic illness so far and the fight I’m currently trying to win to in regards to getting my pain down and the challenges I face with pacing, guilt and coping mentally as well as physically. I was pretty fatigued when I was filming this so hopefully the point comes across. Love & Spoons to you all. It gets tough at times but we can do this!

EDS Awareness Bundle Giveaway

Hey Guys!

EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes all these amazing EDS awareness prizes and I’m super excited to be a part of it ๐Ÿ™‚

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This amazing prize includes: Zebra Ribbon Decals, an EDS ribbon necklace from Kat Makes Stuff, an EDS awareness tee, 3 EDS lapel ribbons, 10 lemon challenge cards, 10 EDS fact cards, 3 EDS awareness bracelets and an EDS awareness mug.

All you have to do to be in with the chance of winning this awesome prize package is enter here:
a Rafflecopter giveaway

Unfortunately, due to high shipping costs this giveaway is only open to all you lovely people who live in the USA and Canada. Anyone else will have to pay shipping costs. Your email will only be used to notify you if you win. All entries will be verified. The prize opens on 20th June 2017 and closes on 27th June 2017. Good Luck!!

Co-hosts:

Hannah from Sunshine and Spoonsย 

Sarah from My Stripy Lifeย 

Brittany from A Southern Celiacย 

Sara at Zebra Writes

Jenni at 1nvisibl3Girlย 

Mary at The Headache Heroineย 

What’s in my Bag?! Spoonie Handbag Edition

Ever wanted a little snoop in my handbag? ๐Ÿ˜› You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!

Avon Haul

Bit of a different video for me. I recently became an Avon rep and wanted to share some of their awesome products with you. Let me know what you think! For all my zebras, I’m still selling Zebra PJs & Slippers and am donating 5% to EDS UK, Get your orders in! If you like anything you can order with me online at avon.uk.com/store/shop-with-jenni