Category: Illness

5 Top Tips for Living With POTS!

New video with my Top 5 tips for living with Postural Orthostatic Tachycardia Syndrome! Please subscribe to my youtube channel for more videos about my chronic illnesses. Have a happy Easter everybody 🙂 Spoons & Love xxx

What is POTS?

New Video all about Postural Orthostatic Tachycardia Syndrome (POTS) which also shows you how to do a poor man’s tilt table test. You can subscribe to my youtube channel Here.

What is Ehlers Danlos Syndrome?

Today has been a bit of a stressful one. I’ve had to call lots of different medical people and am waiting to here back from my GP. I’ve had to sort authorisation for a follow up with my Neurologist, my referral for an ultrasound… Continue Reading “What is Ehlers Danlos Syndrome?”

CSF Leak: My Blood Patch Experience

New video which shows the recovery from my most recent blood patch. Every Blood Patch experience is different and trying to manage having one every month whilst trying to fight my other chronic illnesses has been pretty difficult for me. It’s been 2 weeks… Continue Reading “CSF Leak: My Blood Patch Experience”

CSF Leak: Blood Patch Surgery

I have realised that I talk quite a lot about my Postural Orthostatic Tachycardia Syndrome (POTS) & Ehlers Danlos Syndrome (EDS) but I tend to leave out my Cerebrospinal Fluid Leak (CSF leak), which is funny because it was my bad headaches that started… Continue Reading “CSF Leak: Blood Patch Surgery”

To The Customer Who Judged Me For Sitting Down On The Job.

This is another piece I’ve just had published on the Mighty which I wanted to share with you. After working in the retail sector for as long as I have, I’ve learned that customers are inquisitive and tend to point out when something is different. In my… Continue Reading “To The Customer Who Judged Me For Sitting Down On The Job.”

7 Things I only do because I have POTS/EDS! #Rarediseaseday

Here’s a video I did for Rare Disease Day (28/02). Sorry I’m a little late putting it up on here but it’s still worth a watch 🙂 Please Subscribe to my Youtube Channel 🙂

The Most Difficult Parts of Receiving Treatment for Chronic Illness

The night before my first Blood Patch surgery, I wrote a piece for the Mighty which has just been published so I wanted to share it with you too. It’s all about the difficulties people with chronic illnesses go though when getting any sort… Continue Reading “The Most Difficult Parts of Receiving Treatment for Chronic Illness”

New Experiences & Meeting a Fellow Zebra

Is it too late to say Happy New Year? It’s still just about January so I think it’s okay 😛 I’m allowed to say it because this is my first blog post of 2017! Hope everyone is having a good year so far. I’ve… Continue Reading “New Experiences & Meeting a Fellow Zebra”

Spoons for Christmas Please!

This is the 4th time I’ve sat down to try to write and finish this blog post! This has been a ridiculously busy time for me coming up for christmas, as it is for everyone, but I did all my christmas shopping, cards and… Continue Reading “Spoons for Christmas Please!”