Chronically Jenni
Spreading Awareness & Helping Others with EDS & POTS
New Experiences & Meeting a Fellow Zebra
Is it too late to say Happy New Year? It’s still just about January so I think it’s okay 😛 I’m allowed to say it because this is my first blog post of 2017! Hope everyone is having a good year so far. I’ve been busy this year. The first 10 days disappeared with movies, work, molly walking, and seeing family and friends. On the 11th I had my first Blood Patch Operation which had a much bigger affect on me than I thought it would meaning I was flat in bed for 3 days, unable to walk properly for a week and I’m still relying on my stick to get me around outside. And I’ve had to cancel going to see Busted with my brother and best friend because I’m just not going to manage standing which is a real shame as the tickets were a birthday present and I was looking forward to. For the last two weeks I’ve spent a lot of time on the sofa watching films, Once Upon a Time and The Ellen DeGeneres Show. I’ve had a lot of extra pain in my back and have found it difficult not being able/allowed to bend, stretch or lift at all. Not being able to bake or cook because of it has really sucked! But mum has helped me make my Granola so I’ve at least had yummy food for breakfast. Being so sedentary has really badly affected my Ehlers-Danlos Syndrome causing major flare ups in my shoulders, knees and hips. And the cold weather outside has not helped either. Unfortunately the surgery has also not worked as well as I hoped. I think it has helped my headaches a little but as I sit here typing with an awful one I know it’s not quite done the trick to fix my CSF leak so they are repeating the surgery in February (which we expected) in the hopes of further improving my symptoms. You can keep up to date with my day to day activities on Instagram & Twitter ( @1nvisibl3Girl) as this year I’ve decided to attempt the #pictureadaychallenge . The night before my surgery I also wrote a new article for The Mighty about the difficulties in receiving any kind of treatment when you have a Chronic Illness and you can find that article Here.
But I wanted to tell you about slightly more exciting things. You many remember that in my post before Christmas I mentioned that my friend Dan Parker and I were going to be contestants on a new TV game show hosted by Noel Edmonds and earlier this week we did exactly that. Probably not the best idea 10 days after my op but I knew I could be sat down the whole time, it was something to look forward to and we had absolutely nothing to loose so off to Bristol we went. Dan was very sweet and was my bag carrier the whole 4 days we ended up being there. The hotel was lovely, wish we’d have got time to have used the spa and wish I was able to swim. The first night was freezing which was not good for my hands or feet but every night my room was on a higher floor and slowly got warmer each time 😛 The restaurant were great too I wasn’t expecting much but I managed to have a lovely sweet potato and black bean chilli with rice. On the 3rd night the host took pity on me having to have the same dinner again and had the chef make another dish suitable for my Gluten free, Dairy free, vegetarian diet and brought out a lovely Nasi Goreng with Peanuts which took me right back to my time in Bali. I was very impressed. I have never seen a TV set before let alone been on a TV show so it was a really interesting experience. We went through briefing, wardrobe, make up and spent a lot of time in the green room. I knew there would be a lot of waiting around in TV but I didn’t realise quite how much. The sitting all day was awful for my hips and shoulders and on the second full day of waiting I ended up lying across sofas and floors just to get comfortable. Waiting around can be really tiring as well especially when early starts are involved; being up, medicated, dressed and fully made up and on a mini bus by ten past seven was a huge challenge for me and not one I could repeat in a hurry. But the one thing I didn’t even think of in TV is the amount of wonderful people you get to meet who come from all different walks of life. We met some lovely couples from policemen to events organisers and serial game show contestants. We were in a group of about 12 (6 couples) for certain call times. A group of completely random people but you’ll never guess who I met? (I mean its not like a haven’t mentioned it in the title or anything) Another lady with EDS! I think we were both as surprised as each other as we discovered we were fellow Zebras just as I had been telling another couple about my ‘rare’ connective tissue disorder. She was on crutches, and had been for a year due to a bad knee dislocation and I was still reliant on my stick from my op. It was great to go through this new experience for both of us with someone else who totally understood the pain and fatigue involved in waiting around, sitting in one place and not getting enough exercise. We also ended up being on the same programme and talking to Noel about our condition on the show which will hopefully be shown and received well and raise a little bit of awareness for EDS which would be great. I did , however have a not so great moment but the mixture of an early morning, extreme fatigue, difficult medication management due to a 5:30am start and the adrenaline rush of playing the game sent my POTs crazy and meant my legs started getting pretty uncontrollable shakes after topping up on meds, having some grapes and lots and lots of water in the green room I recovered well enough to carry on recording after the break. The show will be aired at some point over the spring or summer and will keep you updated as to when its on. It looks like its going to make an awesome show and I was really glad to be involved in it.
It’s not long until I’ll be having my next operation and it’s difficult as I will only just start to be feeling back to my level of normal by the time I have to start the whole process again and it’d difficult knowing having another painful procedure which is in very recent memory but at least this time it will be easier as I know exactly what to expect and hopefully it will give me some more relief from my head pain. 🙂
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Joaquin Phoenix ?as revealed t?at hee spoke with filkmmaker Christopher
Nolan ?bout playing Joker ?hich ultimately went t? Heath
Ledger.
T?e 50-year-old actor – whose late?t flick
Joker: Folie À D?ux could ?e streamed no? – ?ot candid ?bout
potentially playing t?e supervillain ?efore h? ?ctually portrayed ?im.
Joaquin recently appeared ?n Rick Rubin’sTetragrammaton podcast
?s ?e reveaoed t??t he spoke t? the 54-yea?-?ld Oscar-winning
filmmaker Nolan abouut portraying Joker ??er a decade before.
He s?id: T?at didn’t… ?asn’t g?ing to hap?en fo? a num??r of reasons.
? wa?n’t ready t?en.
‘That’s one of t?ose things s?metimes whe?e y?u go:
“Why am I not doing this project? What is stopping me from doing this? Well it’s not about me, there’s something else. There’s another person that’s going to do something that’s like, I can’t imagine what it would be if we didn’t have Heath Ledger‘s performance in that film.”‘
Joaquin Phoenix has revealed t?at he spoke
w?th filmmaker Christopher Nolzn about playing Joker ?hich ultimately ?ent to Heath
Ledger
In 2020, Joaquin earned the ?est Lead Actor Oscar for Todd Phillips directed
Joksr ?hich ?as 11 yea?s afte? Ledger (pictured) posthumously
earned ?est Supporting Actor f?r T?e Darkk Knight ?n 2009
Read More
Joker: Folie À ?eux heading to? streaming ?fter box office
flop
?n 2020, Joaquin earned the Best Lead Actor Oscar f?r Todd Phillips dirtected Joker ?hich wwas 11 ?ears after Ledger posthumously earned ?est Supporting
Actor f?r The Dark Knight ?n 2009.
Joaquin continued: ‘I ?on’t kow whet?er Christopher Nolan ?as coming to m? saying, “You are definitely the person.”
‘I can’t remember t?e context of ho? we met. But I know t?at we m?t, and m? feeling w?s, “I shouldn’t do this.” ?ut maybe he
also was like, “You’re not the guy.” I c?uldn’t say.’
Heath died in ? New Yorkk City apartment ?n Januar? 22, 2008, after acxidentally overdosing
f?llowing mont?s ?f physical ?nd mental exhaustion.
The Dark Knight actor died aged 28 ?fter ta?ing
a ftal cocktail of drugs, leaving ?ehind hhis daughter, whho
??s two years ?ld at the time.
Meanwhi?e Joker: Folie À Deux can no? be streamed, just week? after itss theatrical release.
??e movie, starring Joaquin Phoenix annd Lady
Gaga, is now ava?lable to rent f?om hom? starting O?tober 29, in an effort t? recoup som?
of Warner Bros. investmeht ?nto th? film, ?s ?er Variety.
The musical, wh?ch bombed ?t the boox office, ?? ‘poised to
lose ?t ?east $150 mi?lion t? $200 m?llion in it? theatrical ?un’ according to the publication.
Joaquin ?ecently appeared on Rick Rubin’? Tetragrammaton podcast ?s hhe revealed t?at he spoke to t?e 54-year-old Oscar-winning filmmaker Nolan (pictured
?n January) abo?t portraying Joker o?er a decade bef??e
Heath dked in a New York City apartment ?n Januar? 22, 2008, after
accidentally overdosing f?llowing mont?s of physical ?nd mentwl exhaustion. Pictured Heath ?n 2006
Read ?ore
Terrifier 3 dethrones Joker: Folie À ?eux as box office champ
?he movie studfio spent ablut $200 mill?on to produce t?? film
and about $100 m?llion on maketing ?nd distribution,
a?cording t? th? report.
It wou?? nee? to gross about $450 mill?on at the box
office to break even — ?hen factoring ?n th? cut ta?en by theaters — though Warner Bros.
sources claim t?e number is $375 million.
A Warner Bros. spokesperson responded to the report,
saying ‘Any estimates suggested ?y anonymous “insiders” or “rival executives” are grossly wrong and c?ntinues a trend where rumor ?s reported ?? fact.’
‘The film continues to play ?n theatrical release, included ?ith this
week’s ?pening in China, and wi?l continue t? earn revenue thr?ughout ?t? home viewing ?nd ancillary run.’
So far, the musical aboutt Batman’? nemesis haas grossed
$51.5 m?llion domestically ?nd $165 million globally ?fter t?o we?ks oof release.
In comparison, t?e furst Joker grossed $96.2 m?llion domestically ?nd $248.4 million lobally aft?r t?ree ?ays of
release.
?h? hotly-anticipated sequel t? t?e 2019 billion dollar Oscar-winning
filpm ?as considered a surefire hit f?r Warnber Bros Pictures, ??t ended up being slammed by critics
?nd failed to ignite ?t the box office.
Joker: Folie À ?eux h?s arnered the lowest CinemaScore ?n comic book movie history
a? t?e film bombed at t?e box office on opening night.
?he psychological musical thriller — ?hich ha? been criticized ?s ‘bleak’ and ‘disappointing’ — officially
released ?n theaters ?n Friday, Octob?r 4.
Joker: Folie À ?eux, starring Joaquin Phoenix ?nd Lady Gaga, c?n b? streamed now, jusst weekis ?fter its theatrical release; Phoenix ?nd Gaga seen in a still
The movie w?ll be ?vailable t? rent from h?me starting
Octo?er 29, in aan effort to recoup som? off Warner Bros.investment ?nto the film, accordiong
to Variety
Thhe film ?s ‘poised t? lose ?t least $150 mi?lion to
$200 million in it? theatrical ?un’ ?ccording t?
t?e publication
?he sequel to the 2019 billion do?lar Oscar-winning fiklm was consid?red ?
surefire hit f?r Warner Bros, yet end?d up being slammed by critics and failed t?
ignite at the box office
Phoenix reprised ?is role aas thhe Joker ?n t?e sequel, w??ch had earnesd him
an Oscazr for hiss portrayal ?n the 2019 film, ?hile Gaga to?k oon t?e
role ?f Harleen Lee Quinzl (Harley Quinn)
Phoenix reprised ??? rile as thhe Joker ?n the sequel, ?hich ?ad earned him ann Oscar forr ?is
portrayal ?n the 2019 film, w?ile Gaga t??k on th?
role of Harleen Lee Quinzel (Harley Quinn).
?owever, Joker: Folie À ?eux has be?n g?v?n a ? rating on CinemaScore — th? lowest score forr a
comic book movie.
M?dame Web — ?hich notably also flopped ?n theaters ?arlier t??s year and
also received terrible reviews — holds ? hi?her score ?ith
a C+.
?n Rotten Tomatoes, thee movie c?rrently holds
?n audience score ?f 31% ?nd ? critic score ?f 32%.
The sequel ?a? been roundly criticized f?r ?eing ?
musical and ‘ignoring’ t?e DC fanbase – wiith an agent
faamiliar with director Todd Phillips’ process telling Variety hhe ‘?anted noth?ng to do w?th DC’ during the mak?ng of the film, ?ith DC bosses James Gunn and Peter Safran notably abset f?om the film’s ?A premiere afterparty ?ast
month.
? source ?aid: ‘If the fi?st movie ?as ab?ut some
down-on-his-luck, mentally ill guy ?n a downtrodden city, ?t makes maybe $150 [million] worldwide.
Not a bil?ion. People ?howed ?p b?cause t?at guy was Joker.’
?n ?n appaent snub ?y Phillips, th? opening sequence of the film does not inlude a DC Studios logo.
? Warner spokesman a?ded t?at a DC logo appears ?t the end of the Joker sequel, wh?le Phillips declined tto ?omment to
t?e publication.
?everal frictions ?re sa?d to have developed bettween Phillips, DC
aand Warner- ith claims t?at Michael DeLuca, Chairperson ?f Warner Bros.
Entertainment, and CEO Pamela Abdy se?med ‘unwilling’ to? ?ay
no to Phillips duue t? his huge past successes.
?t is claimed Phillips ?ould ‘only’ speak with DeLuca annd Abdy ?ather th?n Gunn and Safran – ?ho took
control ?f DC two months b?fore production ?egan onn Joker 2 in Decembedr 2022.
Gunnn and Safran ?id attend the first director’s cut screening foor t?e studio ?ut Phillips
fueled rift speculation ?hen he t?ld ? reporter:
‘With al? due respect to them, thi? is kind
of a Warner Bros. movie.’
Warner Bros. Discovery CEO David Zaslav ?lso m?t with Phillips shortly after WarnerMedia ?nd Discovery merged ?n Ap?il 2022 andd was ‘op?n to
filming in Los Angeles ?f t?e director ?ould
make the sequel at a lower ?rice point.’
The studio w?nted to film in London whic? w?uld hazve
cost ar??nd 20 per cent les?.
A source directly involved ?ith the film recenntly shared:
‘?he one thing about genre stuff: If you don’t listen and pay attention to wh?t the fan expectations are, you’?e going to
fail’; director Todd Phillips s?en ?ith Gagga and Phoenix at the ?? premiere Se?tember 30
?owever, Philplips insisted ?n filming inn L? with th? budget remaining static.
? Warner spokesman t?ld the publication t?e studio ‘supported
t?? decision to film ?n Los Angeles’.
? source directly involved ?ith thhe film s?i?:
‘No one could get thr?ugh to Todd. And the one t?ing
about genre stuff: If you ??n’t listen ?nd pay attention to wuat
t?e fan expectatiions are, yo?’re g?ing t?
fail.
Insiders also claim studio bosses ??d not w?nt to premiere the fiulm
at the Venice Film Festival, ?ut Phillips pushed ?ack – with ? Warner spokjesman ?aying the studio ‘fully supported t?? decision to bring the film to Venice.
A?ong ?ith Gaga ?nd Phoenix, other stars t?at
ha? appeared in t?e sequel incl?de Brendan Gleeson, Catherine Keener, Zazie Beatz
?nd Steve Coogan.
Christopher NolanJoaquin Phoenix
m? homepag? … ??????????
Thank you for reading and sharing your thoughts! https://webstore.builders
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